Quality of Care Initiative

General Information

Founded in 2020 and lead by Sibylle Koletzko, the task force`s  goal is to align all initiatives and ensure they best translate to actual Quality of Care in patients. This initiative is designed and conducted to assess and judge how well a service achieves its intended skills without reference to standard.
The Quality of Care Initiative fulfills the criteria of an anonymous service evaluation, which normally do not require a review and approval by the Research Ethical Committee.

The Quality of Care Task Force surveys the status of quality of care in structure, process and outcome. The assessment is carried out in European hospitals vounteering in the initiative, to identify gaps between reality and ideal (evidence-based ESPGHAN guidelines), initiate interventions to decrease this gap (implementation of educational material), and assess changes in Quality of Care over time.

Participation is open to all European paediatric hospitals or departments with a paediatrician having intrest in paediatric gastroenterology, hepatology and nutrition. To particpate please contact qoc@espghan.org

To download our SOP for more details please click here.

Data protection concept and Collection Procedure

ESPGHAN understands its responsibility of keeping all data collected within this initiative confidential. The structure of the network and data protection follows a traffic light system to guarantee highest protection of personal data.
Data collected in Quality of Care Database for non-commercial, educational and scientific research purposes pseudonymized at hospital level (unique random ID Number), will not collect any data on patients and will not be exchanged with any third party outside the Quality of Care Network.

More details can be found in our SOP.
For any questions concerning data protection, please do not hesitate to contact us at qoc@espghan.org

Quality of Care Initiative Standard Operating Procedure (SOP) 
download 

Waiver Ethical Approval 
download

GDPR Compliance Munich
download

For questions concerning data protection, please do not hesitate to contact us at qoc@espghan.org

Educational Material for download

ANTHROPOMETRIC MEASUREMENTS- Power Point presentation in different languages

To download this presentation, please click here for selection of your preferred language.

Acquisition and reporting of ANTHROPOMETRIC MEASUREMENTS - Outcomes of the ESPGHAN QoC initiative on anhtropometrics

To download this presentation, please click here 

Awareness Initiative JAUNDICED INFANT - Power Point presentation in different languages

To download this presentation, please click here for selection of your preferred language.

COELIAC DISEASE - Check list for physicians informing newly diagnosed coeliac patients and caregivers

To download the check list, please click here 

COELIAC DISEASE - Educational Pictogram for parents and patients

To download the pictogram, please click here 

Publications

Anthropometric assessment: ESPGHAN Quality of Care survey from paediatric hospitals in 28 European countries.

To read this publication, please click here

Awareness, referral and age at Kasai surgery for biliary atresia in Europe: A survey of the Quality of Care Task Force of ESPGHAN

To read this publication, please click here

Like to participate?

We welcome any European center interested in the initiative to participate. To do so, please contact qoc@espghan.org or office@espghan.org for more information.

Contact

If you have any questions or would like to participate to the initiative, please contact the ESPGHAN Office for details.
Phone: +41 (0)22 9000 401
Email: office@espghan.org